Bryton Being Sick Pass 2 Months

So I was just informed by Bryton Specialist that his sickness Virus/Cold (and Aspen) will all go away as soon as he home schooled started Monday after Thanksgiving . She said she keeping track and note of that he been sick for solid 2 months with this stuff and that he been home 10-15 days and got well and was over it and went back to school and has it back by that Friday.. She not happy about it but she watching what all going on and keeping notes on it all But told me that both my babies probably the wellest too kids never as soon as Bryton on home school woo hoo only 26 or 27 days to go Let the count down being ! I hate this body can't handle nothing and can't kick it out of his system like Me and others. And I'm positive Aspen has the same thing going on he been sick for 2 months straight also and just insane , I'm germ freak I clean this house up and down and My Hubby has OCD when comes to cleaning other then we have no where to put a lot stuff this house is cleaned and I have to use blench to all the time to make sure no food or anything gets in the way of Bryton stuff.. Just crazy !!

Happy Halloween!!!

Happy Halloween Facebook Family and Friends!!!!!

 I hope you all have a Fun and Safe Holiday !!

Update IEP or 504 plan

NO 504 Plan or IEP as promised .. All Big Fat JOKE!!! UGH!!! this mama is pissed

I have removed personal information and also school he at but this is the letter I got today... I'm sorry I have this all stated from a letter from his GI and other doctors that is on the doctor letter head same damn thing. SO MAD

Definition: Celiac Disease (also called “Gluten Intolerance”) is a autoimmune disease caused by the body’s inability to digest gluten. Gluten is the protein found in wheat, rye, barley, spelt and most oats. Even small amounts of gluten act like a TOXIN to a person with Celiac Disease, triggering the body to attack itself in the small intestines. There are fingerlike projections called “villi” which line the small intestines. Normally the villi are responsible for absorbing all the nutrients. When the villi become exposed to gluten, they become damaged or blunted-off, which leaves the person without the ability to absorb ANY nutrients. This is typically diagnosed from blood tests and a biopsy of the small intestines, which shows damage to the villi.
Treatment: The only treatment is strict adherence to a gluten-free diet.
Gluten-Free Foods: The main starchy foods that a person with Celiac Disease can eat are made with rice, corn, potatoes, quinoa and tapioca. Other starches that can be used are soy, buckwheat, bean flours and Amaranth. Most “Celiacs” may eat any fruits, vegetables, nuts, dairy products (Bryton has an intolerance to dairy) and meats not prepared with gluten containing ingredients. McCann’s Irish Oatmeal is considered safe for Celiacs to eat. (The protein in the oats does not have gluten if the oats are not contaminated. However, in this country, because oats are harvested, shipped, stored and processed in manners that do not prevent cross-contamination, thus they are not typically safe for a person with Celiac Disease.)
Does the child have any documented food allergies: No
Does the child have any documented food intolerances: Yes, Dairy
Avoid Cross-Contamination: A critical part in managing Celiac Disease during food preparation and serving of foods is that things remain Gluten Free (GF).
Please develop these habits:
Have the person with Celiac Disease wash their hands prior to eating. Wash eating surface and chairs prior to meals to free of gluten particles or crumbs. Provide person with Celiac disease adequate eating space to avoid cross-contamination from others.
Use fresh serving utensils or fresh gloves to serve the gluten free foods first, then serve the non-GF foods. Avoid touching plate with utensils while serving food. Supervise other children who may cross-contaminate the eating area or utensils during the meal.
Avoid ingestion of art supplies—paints, play-dough & licking stamps and envelopes that may contain gluten. Use gluten-free paints and play-dough if possible—including children at the same table. Wash hands and table after art projects and eating to keep room clean—children may need assistance to wash.
Keep separate containers designated as GF for butter, peanut butter, jelly, frosting, etc. Use a separate cutting board/work surface for food preparation. Have a designated GF toaster too. Use separate pan, water and utensils for cooking.

Unlike a food allergy, exposure to gluten may or may not have visible or outward symptoms. Bryton may have the following symptoms in response to accidentally eating gluten:
Diarrhea, vomiting, constipation, tummy pain, abdominal cramps, passing gas, loss of appetite, nausea, irritability, weight loss/not gaining weight, or other behavior changes, protruding abdomen, muscles wasting away.
Accidental Exposure: There is no medicine or remedy for accidentally ingesting gluten. It can take days for heling to occur in the intestines even from small, accidental gluten exposure. Whether or not there are any visible symptoms, intermittent exposure to gluten can damage the intestines, which can lead to malnutrition and predispose the person to osteoporosis and certain types of cancers. Thus, your cooperation and efforts are important in managing Celiac Disease.

Action Plan…
· Notify the parent in writing if there is a known gluten exposure or if Bryton has any of the above symptoms.
· Please call the parent if there are any foods in question.

O and read there is spelling errors on this letter.. I so mad and upset Im beet Red

Wait min this isn't on letter head. this is a Doc format ... really these people really think i'm that stupid.. yes i'm really upset and mad ..

This all came from the Special Ed Dir of the school

Other Updates About School 

Ya Ya Bryton Is the Cool Kid Today wait and see after my phone charged up what a COOL KID gets for the day Mrs Blank Helper is on the bag he brought home.... Boys Neruo having a flipping fit and wait until you see all his homework this Kindergartner has for homework.. I can't believe any of this and they want to go school all day well why not the parents are the ones teaching there children not the teachers.. I

Photos be in the comments part .

Cool Kid Work sheet for a Kindergartner

My Favorite Book?
The Author Is?
The Illustrator is?
The book is about ?

I all for our kids getting a good education but come on this new system sucks!!!!! all this core math bs and making a kindergarther with all this homework.. WTH dose these edcatior/Schools think our kids are I do believe there HUMAN not Robots...

Mrs Charles Bryton seems to be tired in school Hmmm I wonder why that is well there no down time at home or family time because my son is set home with 8 hours more homework and remember he has Adhd and ASD and other medical issues it nothing but meltdown city in my house. So Im sorry you disagree with me but I refuse to put my child though alll this crying upset anxity issues at home do all this work after school he needs down time period.. meeting with the teacher and school on November 6th for parent isn't going to go well for bryton meeting. I so upset over all this and the plan they gave him for being at school..

Believe me Bryton school hates me !!!!

— feeling annoyed.

It been busy few weeks

Im so sorry I hhaven'tbeen around to post any updates but this been very busy few pass weeks., And don't look like it going to get any less busy.. Its like it never ends around here my calender is always filling up .  Its always one thing after another, And Just not a enough time in the day get it all done.

So Monkey started school Kindergarten and his first week went really well other then Friday, He got time out and the next week he did GREAT no time out or on yellow then pass few weeks after he half and half.  Our nights after school are pure HELL he so overloaded and just can't handle it we can't get homework down or can we even have family dinner he always on edge and there our mornings go just about the same. It totally up and down emotions. Not to say he is so aggressive, He not dealing with the Change between home and school and our set of rules to ones at school. 

The school on other hand is whole other set of issues when comes Monkey. He not aloud to have any of his sensory stuff no chewy no weight vest nothing. I and the therapist think they put that in his day and give him sensory breaks we have alot better evening and morning and he not so up tight at school . From what I been told he doing OK at school other then them days when he can't hold it together there either like at home . But I been told by his advocates to just sit back and let him show them that he needs all this stuff to help him tho a day. I trying so hard to do that but it so hard to keep your mouth shut when comes to your child. 

He had one therapy apt and they told me they can tell that he not getting and sensory help during the day he off and can't hold it together.

Just been nuts around here daddy wecked the car last week and his brother been sick for few weeks mommy hurt her foot and having to get braces ... Just Crazy ! I trying to get things ccaught back up and updating on both the boys and we have very exciting update but it going to need its only post to share on :)

You all have a great day Take Care Monkey Mommy.

One Them Mornings

Have you never wonder if that line of cars in front of you and behind  at Starbucks, Are Warrior moms or dads. As Im making the U - Turn to go to Starbucks this morning where I been going since Monkey been in school and pretty much sine mid july just because Im totally addicted, But there is Im so tied and need that cup of Jo to wake me up and that Ice Tea to keep me a awake all day. But This morning this I just had this feeling that I not the only mom or dad in that line that has children that are special needs and are here for the same reason that Im.  You never know if they are but there is always that thought your not alone even if you just waiting for that cup of coffee or waiting to order.. 

Your Just Never Know :)

School Meeting /School System and Staff

How do you respond to special ed dir says to you , Well you just said he dosent eat his lunch at preschool ?? I responded with yes that is true but do his iron and portion issues. You can't not just give him anything he has to get what everyone else has. And to answer it more detail my son says no to everything he has not realized he eating the meat in the meal because the doctors have told me for 5 years is to season it and hide it so he will eat it. He is also only 5 years old he dosent not know Joey cupcake not gluten free. He yet again 5 years old I and his dad and is supporters have the ones that makes sure he gets only right gf milk soy free foods. He just few days realized himself that if he eats off his brother bowl of cereal it makes his belly hurt and he feels sick.. I Turely can't wrap my head around a professional sat right there in front me and sad that... And they can get away with it I'm so upset and feel like I'm about send my son in very unsafe place where these people have not one clue about any of his medcial or how risky it is if you don't follow the doctors with the PhDs say that safe for him... We was told yesterday there will not be 504 or a Iep only think they have do is make him a medical plan and have it in place.. Yup this was me what the hell ?? Are you serious I want that all in writing.. Yes in over beyond pissed!!!

What do you do when school system dosent aloud your child with SPD , ADHD, ASD. Not aloud to have his chewy where he can freey get when he needs it or he not aloud to bring his Pecs schedule book with him to help him or to know who his Safe people are?

What A Service Dog Could Do for Our Family and Our Boys Safety

Reaching out to all friends and family and Supporters to please share it mean a lot to us and thank you so much.

I am working towards obtaining a service dog for my two sons Bryton and

Aspen. My sons both have multiple and differing special needs.

Our family is in need of a service dog that will be trained to alert us

to various medical issues that affect both of our boys.

Bryton was born six weeks premature and soon after birth it became

apparent that he had some serious issues with his formulas. He has since

been diagnosed with Celiac’s Disease and an unusual allergy to a

protein found in Wheat and other grains, and he also had a allergy to dairy products. Bryton has also been diagnosed with Autism Spectrum Disorder also Attention Deficit Hyperactivity Disorder and Sensory Processing Disorder. It is said that 49% of children with Autism are known to wander/elope, Bryton is one them. At night Bryton gets up and wanders, we have installed safeguards to keep him inside the house but as he gets older he learns to use them and we can never be sure he

can’t get out.

Bryton has also been diagnosed with an immune system disorder that

makes it difficult for his body to produce antibodies to fight off even

the most common infections and he does not build immunity to common

illnesses that children are immunized to such as measles, chicken pox

etc.

Aspen has been having seizures since shortly after birth. He has bouts

of breath holding and fainting. He has recently been diagnosed with a

mild speech delay and it is suspected that he may also have ASD.

Our family would like to have a service dog that would alert us when

the boys wander and especially when they are near water. Especially with Aspen because 

his seizures and fainting spells are unpredictable, he cannot be allowed to swim or participate in water activities. We would also like for the dog

to alert us to Aspen’s seizures, and if possible when Bryton comes

into contact with foods that contain wheat which make him very ill.

The service dog would allow us the freedom to leave the boys

occasionally with a CPR trained caregiver, give us some peace of mind and help the boys socialize and achieve some independence as well.

http://www.gofundme.com/bzu8ow

http://www.gofundme.com/bzu8ow