Bryton New Christmas Gift his every own hiding place his bed tent his papa Jim got him.. 

He loves it!!

Bryton Video

 I Findley got Bryton video made of his CMN years so far. But I can't upload it to Blog.com it won't let me so I have to go into You Tube and do it hoping it will let me upload it and then post to here for you all to see :) 

DM Video for Bri

I been working on a video for bri for DM this year for all the years he been involed also been working on video for his birthday of his 5 years. 

Bri in Calendar for CMN

So this pass weekend we found out at our Children Miracle Network  meeting that Bri was in the calendar for there national calendar and will be selling them though out the northwest ohio or even to families out of state. I'm so excited and so proud of him . Have to thank my sister for taken so a beautiful photo of him.  She had all her photos on her facebook page at LoveLeigh Images by Jennifer.

Repeating Words and Phrases

This is Bri to T, He will copy me when Im chating on the phone is favorite with is when Im telling someone on the phone credit card numbers or phone number or our address, or even social sercurity numbers. Or he will listen so well to someone chat in store later in the evening he will copy what they chated about and repeat it when playing with his toys.

I will be posting a Update soon On Bryton since Oct when I last posted update. Im so sorry not up to date on his updates on his blog.  Goodnight and Sweetdreams Mom Sue

Bryton New Favorite Song

Bryton has a new favorite song he been singing for days now after seeing this video , Done by our local chapter of Children Miracle Network , That we are involved with and BGSU Dance Marathons, Every year, Any honestly I have been listening to it myself to get though all these appts both boys has this upcoming month for there yearly checkups and there just been alot going on these pass year and it been hard on our whole family. 

Update On Our Special Monkey

So start back in July we been trying to get Bryton some SSI to help with what he needs daily to help him out But his lawyer we had for him back out on us 3 weeks to our court date. I was in a mad rush to find him a new lawyer and get him more help to get his SSI something he needs to get what all he needs. Also his social worker Kristy he had for over a year now, Is not has to finish up here master degree and will be leaving him and we start having a new social worker that comes to the house and out to his preschool or school to visit and see how things are going for him . Bri was very upset for weeks now that Kristy wasn't around anymore. He so hates change so bad, He struggles so much when there is upset or change in his schedule. So we was able to get a new court date , Started doing the testing for The Center for Excellence in Autism and School, At The University Of Toledo, This testing took a few months. I also did re enrolled him into Head Start. It was a very hard and a lot of thinking if it was best for him after what they did to him in april. So we had meeting with Head Start with his new social worker, It went well I told them what I wanted for Bri and how should go and how I refused to aloud them to bug my doctors he has and how I learned a lot about the ADA Laws, These things can be done so that Bri can be there and be safe. So school did start in Sept and 3 days into him being at school he got sick and wasn't able to go back to school for a week. I knew going into this what was going to happen we opened his Immune system to new germs and that causes a upset to his immune system and he usually gets sick. So ending up being home for a about a week with a cold/Allegories issues, He has appt with his Immune Specialist that week so I took him in and she checked him out and told me he needed lab work done and also do this asthma he has to go on breathing treatments daily. In this lab work they check on this vaccines,and if they are still working and which one dropped off and will have to be repeated. So he goes back to school with the plan suppose to been wrote up and ready to go for him to start using his weighted vest and having a swing and all the other stuff he could need in his school day. But there is no plan nothing had been put in place and we not going into the middle of Oct I'm still asking for it he plan. As I'm working on his school day and plan during the day I'm also working with this new lawyer Kate in getting ready for his new Court date Oct 23rd. and more closer it was getting I was getting nervous as it was coming up. I did get back his testing from UT, The Center for Excellence in Autism and School,  His DX now are  ASD, ADHD , SPD, Anxitery, disruptive behavior disorder, PDD NOS, Celiac Disease, selective immunoglobulin a deficiency, Selective deficiency of Igg, Asthma, Developmental Coordination Disorder. He will not have 2 therapist helping him one a woman and a male that is a student working in this field . (I'm actually very excited about him working with a male therapist I think he needs this a lot and the hopes that daddy will start to get involed also), He will also have Sharon and his male therapist Jason will be coming out the house with Sharon to work with him in the home too and I hoping he get to go to the school also to help out. He will be seeing his female therapist Terry few times a month , As she be getting updates weekly from Sharon and Jason which he will be seeing them 2 times a week well Sharon he will be for sure once at school and once at home. He still getting his OT and Speech therapy also once a week OT and Speech every other week.  I need to get to bed , There is more to update , I promise I will be updating more in the next week we have some exciting news to tell you all. Thank you for being here and supporting Bri and his family and his  Journey as Our Special Monkey 

  Happy Hallween!!!

 Good Night all  and Sweetdreams  Bri Bri Mommy Sue

Update on Our Special Monkey

Hi All,
Well I was able to get Bri Bri back into school he going to the same one he was at last year. But this year he has helpers with him watching over everything there doing and how safe bri is there and what is actually going on. He started school 2nd week of Sept. But 2 days at school and he got sick with allergies/virus so his immune specialist put him on more meds and now has to have Ashtma treaments once a day. 

So far the Teacher at school said he doing great. But his social worker that out there with him telling me he very hypro and running from one thing to next when out the play ground and in the classroom, Sometimes I don't know if is should truely believe his school on things it really upset me that I'm not getting a daily report like last year so I have stuff to fall back on.  He stil not eatting at school I just don't understand that Ugh! 

When he gets home from school he usually he very hyper and running around and not so nice to his baby brother we been having alot trouble with that also. I have hard time getting him to clam down alot since we started school.

He been going to his OT for over 1 1/2 now and I just don't think she getting what I'm saying when i tell her he very aggresstive and having behavior problems at home and I get well I think this is all behavior and he don't do this for me here , I said yes your one on one. UGH. Then there sometimes she come out and say he can't have a stucker because he been very aggresstive today I said this what i'm been trying to tell you, I deal with daily.  It drives me Nuts. 

I'm sorry for not updating in the last few months. It been pretty busy.

Bri At Lowes Building With Daddy

Bryton didn't do to we'll at making his car with daddy he kept screaming it too loud mommy and getting up wandering around.

 He just wanted help Lauren at lowes clean up. And run around put thing in right spot like putting caution tape in box that fell all over floor .   He let daddy build it 

Every kid is different.


Every day is different.


Every age changes the way in which it manifests.


Diet and nutrition can make all the difference one day and do nothing another.


There is no “cure”,.


No antidote.


Not enough experts.


Differing opinions.


Too many sceptics.


Too much politics.


Not enough... support.


Way too much ignorance


And far too much discrimination from those who don’t get it.


And yet if I was given the opportunity to “send him back” and make him “better” I wouldn’t.


He is my blessing, my joy, my challenge.


More meaningful than any troubles I might ever have.


Much more important than anything that rises up in my own ego.


More precious than any metal I own and exactly as he is meant to be...


Perfect in his imperfections.



~Author Unknown

Bri Behavior Chats

Bri loves the game Angry Brids so his social worker ( that comes to the house 2 times weekly to work on behavior and feeding and sensory issues) and I made up to get him to start to do things and so far this week and last week it is working pretty good other then cleaning up this room .

He has to get all good Angry Birds which are all Red Angry Birds,

Then If Don't do these things during the day he gets Green Piggie for not doing it. 

This what It looks like he had a good or bad days. 

These are what he is suppose to do daily . this just start what we be adding too later on as he gets the hang of this chat and understand what to do during the day But at this point he dose understand it for the most part. It getting him doing it everyday so he can acutally went a movie tickets with mommy and daddy or build a bear day or bowling games ect. 

I'm so Confused about the report I got from the Developmental Doctor On July 15th this afternoon and I totally don't agree with it.


I"m sorry I haven't been around much I been pretty busy with Bri appts and his little brothers.

Sue

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Bri Bri lining and Stacking

Bri Bri was very scared today from the storms we was having and he was doing this and singing loudly and doing lines and stacking , I think was being done do keep him off what was going on he couldn't handing all storms and the nosies we was hearing this afternoon. 

Bri Bri putting things in lines and stacking up his baby brother's baby food jars , He dose this stuff with  my can goods too. 

My son is so scared we having some very bad storms warnings for tornados and thunder storms the winds are bad he can sit still he signing loud arcs and numbers he wanting juice and every time tv or iPad or the cell phone starts scream he puts hands over his ears screams too loud stop it mommy and runs to hide but I have got all the doors closed and ready to take cover with the boys.. I hate too see him like this 

Bri Picking Up Toys Chat

Bryton Mommy said you don't get this living room picked up right now I'm going to start putting all the toys in the trash including your lion chair ! So please start picking up your toys Bryton Phillip!! (Bryton)- Hmm Mama (he thinking and he got his fingers up by his mouth) Well Mommy hmm you can just trash them . My butt hurts I I Can't Pick Up My Butt hurts and My Belly UGH this child you can't fool him for nothing..