Monkey's Social Worker Appt!

Got a VENT this morning, It been eating at me since Tuesday evening.  Bryton see social worker and has a case manger that comes to the house for his behavior and other issues we deal with . Well about a month ago the social worker asked why she never seen any ados reports on him. I looking at her puzzled said it should be all in his file here he been going to here for over year and half if not more. UGH!!! ( let me tell you that was just burning me up inside ) and I have been bring in all the reports I get or test that is been ran on him to you when you have a appt with him.. hmm well someone not logging them into the computer then. (So i'm still trying to be as nice as I can at this point.) I said ok I bring in what i have so you can see them and put in the pc .. OK I gave all the reports to the case manger few weeks ago when she was out the house. and this Tuesday for our appt at the social worker office .. She tells me you know Sue I read everything on his medical background and all the testing done on him and I don't see Autism..( WHAT THE HELL???? HERE WE GO ONCE AGAIN!!!! ) She been trying to get me to let them test him again on ADOS , I was like NO we done this so many times there , They have proved the problems and I just want to work one them I told his case manger this after talking to his PEDs doctor over this issues once again.  So on Tuesday I was like well at this point I don't know anymore the signs are there and you asked for video of his behaviors at home I showed you pictures of odd and weird things he dose and off the wall noises he makes.  and her answer is well what i have seen is normal to me what do you think. I just sat there ( I'm telling you I was burning up about to blow a gasket !!!) I was like well Im sorry but the Nerou and his Pedi doctors been watching him and seen all this going on since he was about a year old. He never take until he was 2 years old and that was after they put him in speech therapy and tubes in his ears ( the tubes only got put in because he wasn't talking not because of ear infections and Help me grow wanted me to take him to ENT be looked at).,  So I as she was telling me all this stuff about how things he dose off the wall are normal for a child to do . Bryton is throwing toys and dumped them all that her and I just picked up. I wanted to laugh so hard but I couldn't..  She said ok bryton time to go and next visit we won't be getting toys our because of your  behavior today. So we are back to point A! with all this stuff again I feel I being tested or they want to make me feel like horrible mother. Not say I guess there calling out the boys Nerou and Ped doctors too as there wrong in his DXs .. Im so pissed I know shouldn't be and I shouldn't let this build up inside me but just makes me so mad that we not getting anywhere again and they want start over. I so over this BS......

Service Dog for My Monkeys

I am working towards obtaining a service dog for my two sons Bryton and
Aspen. My sons both have multiple and differing special needs.
Our family is in need of a service dog that will be trained to alert us
to various medical issues that affect both of our boys.
Bryton was born six weeks premature and soon after birth it became
apparent that he had some serious issues with his formulas. He has since
been diagnosed with Celiac’s Disease and an unusual allergy to a
protein found in Wheat and other grains, and he also had a allergy to dairy products. Bryton has also been diagnosed with Autism Spectrum Disorder also Attention Deficit Hyperactivity Disorder and Sensory Processing Disorder. It is said that 49% of children with Autism are known to wander/elope, Bryton is one them. At night Bryton gets up and wanders, we have installed safeguards to keep him inside the house but as he gets older he learns to use them and we can never be sure he
can’t get out.

Bryton has also been diagnosed with an immune system disorder that
makes it difficult for his body to produce antibodies to fight off even
the most common infections and he does not build immunity to common
illnesses that children are immunized to such as measles, chicken pox
etc.
Aspen has been having seizures since shortly after birth. He has bouts
of breath holding and fainting. He has recently been diagnosed with a
mild speech delay and it is suspected that he may also have ASD.
Our family would like to have a service dog that would alert us when
the boys wander and especially when they are near water. Especially with Aspen because 
his seizures and fainting spells are unpredictable, he cannot be allowed to swim or participate in water activities. We would also like for the dog
to alert us to Aspen’s seizures, and if possible when Bryton comes
into contact with foods that contain wheat which make him very ill.
The service dog would allow us the freedom to leave the boys
occasionally with a CPR trained caregiver, give us some peace of mind and help the boys socialize and achieve some independence as well.

Trying new drink for him

We are trying new drinks with him that has no red dye in it and get away from all the sugar and pop stuff.  here is what we tryed this week and he loves it so dose his brother. 

Monkey's tournaments Weekend

Bryton and family went to his tournaments few weekend 

ago and he loved it we had  a lot of fun too even though it 

rained all day Sat, We got one game in on Sunday tho,

We got to go swimming and, 

we had water gun fights and we 

also able to get to know others new friends. 

I won a award and state highway portal , I had so much fun

Mommy and Daddy said we be doing it next year for sure. 

I can't wait until baseball season again and I get to hang out

with my baseball family and friends. 

Here is some of the photos we took on our trip 

Monkey Behavior Update

We been having a lot of behavior issues with Monkey, So I decided to start making him use his weighted blanket, and even on our trip over last weekend and I'm starting to see a big difference again.  He starting to regulate better in the mornings. I have also told him when he upset to go get his blanket or Mommy will get his weighted vest put it on him . Tho he hates wearing his weight vest ( Grandma got his weighted vest at Fun and Function  )for me at home but does wear it at therapy. We got our weight blanket at this place ( Sensa Calm) grandma got for him back when he was 2 years old. So needs a new one with right weight in it. I hoping to be able to get him one soon.  And I love there blankets very well made. A little costly but totally worth it. 

♥Working On Monkey's PECS System ♥

Bri social worker and I been working on his PECS system book to take to school this year and for at home. I finely found right notebook to put them in for him and won't take much room and not so heavy for him to carry around.

Our Exciting News

We are so excited to be able to go to Monkey's baseball tournaments this weekend coming up. Mommy has been packing everything up since Monday night to make sure we have everything , Monkey is so excited he keeps asking mommy we go to the hotel tonight to stay and play baseball..  I really hope he able to enjoy it and loves this trip. I do have to say I think the adult males are more excited then the women(moms) and all the fun actives they have planed for the kids and adults ..  

So we will see you all next week sometime with photos from out trip and all the fun. 

Have a great weekend to all our friends and family and supporters. 

Let's Play Ball !!

Monkey's Last Baseball Team Picnic

Wed night was Bri's last practice baseball game and team picnic. 

So Bri and Mommy made cupcakes to take to the picnic. He really enjoyed helping me until the end when he couldn't frost them and help me on that part. He such a great helper and did such a great job. 
I know this cake mix wasn't gluten free, All bryton did was put thing into the bowl. never handled anything with gluten or mix.. 

Monkey's Last Baseball Game

Bri last baseball game before tournaments

Sunday evening was monkey's last baseball game before we go to tournaments this coming up weekend, He did great he got award 

I'm so proud of him this summer he have got tho a HUGE milestone with trying out playing baseball.

He has really surprised me each time we go to his practice or games on sunday this season and being our first year I didn't know how this was going to turn out with him . We still have a hell of time getting him out the door to go to each game or practice always a meltdown and he don't want to go but , When we get there it all different story he loves it. We have to keep on him to force and keep our hands to our self but loves being with his buddy Chole that he just adores... and he loves being with this longtime buddy friend Dylan which we meant tho Children Miracle Network and his mom and my mom been close friends for over 5 years now. 

We can't wait until next year .. 

Mommy and Daddy Surprised Me Today

Mommy and Daddy took me and my baby brother to Walmart to go shopping , I kept asking them why we go to Walmart for. Well the day before mommy seen a big boy bike there on sale and told daddy and he decided it was time to go get me a big boy bike and a helmet , I was so excited and I love my new bike and helmet, I gave my old bike to my brother Aspen , Mommy said he can't ride it just yet but we put in the shed for him to ride it when he gets bigger. 

Mommy talked to my OT Mike and she asked him about be getting a new big boy bike and he said it would be great idea to help me clam down and it is heavy work that I need so much daily. I really have enjoyed being on my new bike.  I did fall few times trying to turn it but Mommy said dust it off and get back up there so you can get the hang of it and I did. I hoping we get to ride it more.. 

 Just little something to share to all our friends that is Special Needs Families

Hair Cut Milestones

Hair Cut Milestones

We have been able to take Bryton for hair cuts again 1st he let us was in March of this year and he did great he had to hold mommy hand but that is ok this is HUGE for him he will only have this hair cut at Walmart, This is one his steps that he coming to enjoy is going to get his hair cut and lately it been very few months . I'm so proud of mommy and daddy big boy.

Lowe's Building and Grow with Daddy

Lowe's Building and Grow with Daddy

This pass Sat Bryton and daddy went to there first Lowe's build a grow of the summer and Bryton has meant huge milestone in going usually it is a fight to get out the door and also he doesn't really want to join in to helping daddy do the project they have for them to do together, I was able to go with them with little brother and get some photos to show off on his baby step milestone. 

Daddy and Bri has been doing Lowe's Build and Grow for the pass year . 

If you like to get involed with Lowe's Build and Grow click on the link 

It is a great program for daddy's to do with there kiddos. 

The Bad The Ugly Of These Disease

The Bad The Ugly Of These Disease 

Bryton had lot trouble and dealing with Oral Sensory, He tins to chew on die-cast cars and paperback books and paper and batteries and wood things, We have also found him chewing on electric cords. ,  He also has alot of trouble with licking things also and he will lick windows and walls and much more and there times we find him chewing on rubber things.. This why has to have the P and Q Ark Chewy   for him to chew on them and not things he shouldn't be that is unsafe and could harm him . 

Our Day Trip

In May we took Bryton and his brother to Mad River Train Museum In Bellevue Ohio He loved it he got to  get on trains and look around and we took a lot of photos of him in the trains and having run. It is one place I say if you have train lover it is a must see. 

If you like more information one Mad River Train Museum 

Bryton Wish Lists

I have been getting email about how they can send Bryton smiles or cards and even anything to brighten up his day.. I have set up Bryton wish list on my amazon account where you can take a look at. In no way do you have to get him anything or send him a gift of card we are just glad you here as supporters.. This is only if you like to , If you need anymore information you may send mommy a message or email on my facebook page. 

I have made Bryton Wish List Amazon.com. 

Bryton Amazon Wish List

Mainly for our family out of state to get him something that he needs and can use and ideas for gifts for him. 

Update On Bryton Doctor Appt Yesterday

 Bryton Nero doctor appt yesterday went very well , He told us he wanted to keep him on his Tenex daily and since the School system is refusing to give him IEP to help him in his school day, He wants to see Bryton every 2 -3 months  to see how he doing in school. He also was upset that he didn't receive a letter or a call from the school system after he sent them paperwork on benefit of IEP for bryton do to his health issues. He said Bryton looked good yesterday and was doing great yesterday and hoping this just a start, I did tell him that we have been having a lot of behavior issues at home and it gotten worst since being of June and seems to get worst on very hot and humid days and if there any kind of change in his schedule at all. He said that will happen and that if i have any other problems to call him and he will get us in to check things out and that His next EEG will be scheduled for December when it is his yearly check up. 

Very Unhappy Little Boy

I have a very unhappy little boy tonight with mommy, I had to trash his train table he loves one his favorite toys and to play with. But he been climbing on it and getting things off shelfs in his room and jumping on it and we needed more room in him and his brothers room. Not to say he was jumping from it to his bed and his bed had to be moved from from the window do his jumping on the bed all the time. Because he could jump throw the window. Bryton has no awareness to safety at all. I have tryed talking to him I have grouding him from things taking things from him like favorite toys, I have also tryed putting him time out none of it is working to get him to understand not to do it and it not safe. So tonight i had to make the call and get rid of it. feeling so bad about it :( But I know it be better for now and I told him if we never move to a bigger place we will get him a new one when we have a toy room to put on it. Poor baby cryed himself to sleep tonight